The Intensity of ‘Empty Nest Syndrome’ When Your Child Has a Chronic Illness

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Am I having issues letting go? Letting go of dealing with my daughter’s well being points?


The time period “empty nest syndrome” is used loads as our youngsters transfer into younger maturity. When your baby with lifelong well being points leaves, these feelings are compounded. I name it Empty Nest on Steroids!

According to an article in Psychology Today, “People want their children to grow up and lead independent lives. Yet parents often feel lonely, sad, and filled with grief when their children depart.”

I really feel all that and extra! My job had been to maintain my daughter alive and ensure she had the most effective care. I had to ensure she is prospering, not merely surviving. That’s it. I must be grateful she will tackle her personal healthcare wants now, however I’m left with so many questions on my objective in life.

What do I do now? What is my job? What do I do with my time? Where does all this information and data go?

I spent hours and hours researching her varied well being circumstances. I educated her heart specialist about her coronary heart defects and her genetic dysfunction. The orthodontist placed on her braces simply earlier than her progress plates closed as I requested. The endocrinologist took my lead when it got here to combining progress hormones with estrogen alternative. My cardiac data contributed to the newest Clinical Practice Guidelines for Turner Syndrome.

According to the American Academy of Family Physicians, “Clinical practice guidelines are statements that include recommendations intended to optimize patient care that are informed by a systematic review of evidence and an assessment of the benefits and harms of alternative care options.”

I’ve achieved all of the “right” issues to organize her, however my feelings are having a tough time catching up with this transformation in actuality.

We’ve been getting ready her to take over her well being points since she was 16. Check.

She took cost of one other new prognosis at 18. Check.

When she went to varsity, she took over all her medicines and virtually all her physician appointments. Check.

She made the ultimate selections on surgical repairs to be made and which surgeon would carry out her open-heart surgical procedure at 20. Check.

She began medical college and attends her cardiac appointments. Check.

She is liable for all her healthcare wants, however there’s a tiny little bit of me that wishes to hold on. When her boyfriend who’s finding out pharmacy requested whether or not she’d taken a sure at-home blood check, I knew it was time to let go.

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